SINCE birth, Olesya Kulikova has been in and out of hospital with a myriad of health conditions.
From pneumonia, bronchial asthma and intense stomach aches, the now 27-year-old has had her fair share of ailments.
Doctors however, were unable to giver her a diagnosis until 2009, when they found her organs were in the wrong place.
Olesya suffers from a rare condition known as situs inversus totalis, an abnormality which is characterised by a mirror reversal of the essential organs.
The illness occurs in around one out of 10,000 people who are born with the condition – with Olesya being undiagnosed for 13 years.
It is usually detected through X-rays, CT, MRI scans or ultrasonography.
Read more on rare conditions
I’m only 28 but my hands look like they belong to a GRANDMA – strangers ask why
I have to vacuum my bed every morning because I shed skin like a snake
She said that she was 14-years-old when she found out her heart was on the right side of her body.
Then four years later, at 18, she was told her liver was located on the left.
Olesya, from Achinsk, Russia said she had been in hospital in 2019 for pneumonia when medics told her her lungs were located in a 'mirror fashion'.
"Every time I go through a medical examination, I have to explain that my heart is on the right, not the left like all people.
Most read in Health
I'm only getting a few hours between sleep to make memories, says Deborah James
Soaring cases of fever that causes people to bleed to death sparks fears
My daughter was told she was 'too young' for cancer – she died months later
One last sleepover with my daughter helped me smile, says Deborah James
"I don’t have tattoos, documents or jewellery which could warn doctors if I lose consciousness.
"During electrocardiograms, a test which checks the heart’s rhythm, [I have to tell] doctors to place the electrodes on the right," she told NeedToKnow.online.
In 2021, Olesya was diagnosed with kartagener syndrome, which is a hereditary condition which causes difficulties moving debris and fluid from the lungs.
Because of this, she says she has had pneumonia four times, has bronchial asthma, shortness of breath and a constant cough.
Fast forward to April this year and Olesya went to the hospital with stomach ache – only later to be told she actually had kidney stones.
In order to try and control and treat her conditions, Olesya started going to the gym where she hopes to help her lungs “work properly” and so far, has found breathing easier.
What is situs inversus totalis (SIT)?
Situs inversus totalis (SIT) is a rare condition in which the organs are on the opposite side of the body.
Experts say the underlying causes are complex and familial cases have been reported.
It can be caused by a recessive genetic condition and an unaffected carrier mother and an unaffected carrier father have a 1 in 4 chance of having a child with SIT.
There are different types of the illness.
Dextrocardia is when the heart is on the right side of the body and levocardia is when it's on the left
Levocardia is rarer and is usually associated with other cardiac issues.
Another type is situs ambiguous- which is when several organs are in the wrong position.
She claims that her condition is an anomaly and that because of this – people who have the condition and get pregnant are told to get a termination.
Olesya, who is the only person in her family with the condition, added that she had previously met a woman with the same illness, who told her that if the baby did survive, it could be born with disabilities.
"As doctors rarely meet this type of scenario, they assumed that the baby would die – but she had a healthy baby, which I call Miracle.
“In another case, the child was born with their heart on the right and had a defect, but he underwent surgery and now has a completely healthy heart.”
Despite not yet having any children of her own, she is now trying to raise awareness of the illness to make people feel less alone.
She added: "I admit, I was embarrassed that I had situs inversus totalis – but I started to blog and people from all different countries wrote to me.
Read More on The Sun
Full list of UK flights cancelled today including TUI and easyJet
BGT semi-final descends into chaos with children left in tears
“Most people often ask questions about my health and many find me by hashtags where I offer support.
“Of course, everyone hopes that their children will live happily ever after with this anomaly and I’m convinced that we can lead a normal life.”
We pay for your stories!
Do you have a story for The Sun news desk?
Email us at [email protected] or call 0207 782 4104. You can WhatsApp us on 07423 720 250. We pay for videos too. Click here to upload yours
Click here to get The Sun newspaper delivered for FREE for the next six weeks.
Source: Read Full Article