Terminally ill boy, 13, desperate to walk mum down the aisle on her wedding day

A terminally ill boy battling incurable cancer is desperate to walk his mum down the aisle on her wedding day.

Brave Josh Sweeney, 13, from Bollington, Cheshire, has an aggressive and high grade tumour on his spine, for which there is no cure.

It is the third time he has battled cancer.

The schoolboy was delighted when his stepdad Joel Lapi proposed to mum Fiona on Christmas Day.

But there's now a race against time to raise the money for a wedding that can take place soon enough for Josh to be there, Cheshire Live reports.

Fiona, 32, said: “He would be so happy, he told me, ‘you know I am going to cry’. Everyone says we are so alike and we laugh about everything together.

“It would mean everything to me, I couldn’t get married without Josh – how could I enjoy it without him. It would be emotional, more than just a wedding.


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“Even though he has always been ill he doesn’t seem it. He doesn’t complain, he is so funny and tries his best to do everything. He is popular and so brave and always talks about the future.”

A JustGiving fundraiser to enable the wedding to take place has been set up by friend and fellow parent Danielle Parkinson.

It is hoped it can take place within six months at Hollin Hall, a venue the family can see from their home.

Fiona and Joel, who is an engineer at Jodrell Bank, have three other children, Alfie, eight, Oscar, four, and Felicity, three months.

Josh was diagnosed with a grade two spinal glioblastoma when four months old.  The treatment that helped him beat it damaged his spine and he was left needing a wheelchair.

In 2012 he received the diagnosis for a second time and, with the aid of proton therapy in America, beat it once more.

However, it returned in worse form in May last year and the family has been told there is no cure. Treatment has also taken a further toll of Josh’s physical capabilities.

Fiona and Joel, 33, are currently waiting for biopsy results to see at what exact stage Josh’s cancer is at.

But medics have warned them the marriage needs to happen quickly if Josh is to fulfil his wish.

Despite his illness the teen, who had attended Fallibroome Academy, remains positive – still following Manchester United and being a big fan of WWE wrestling.

Fiona said: “We haven’t got years to save and saving isn’t something you can do with a sick child as you want to make memories or are spending time at the hospice.

"It is really nice that people care, I’ve never asked for anything since Josh was born but what Danielle has done is amazing.

“When Joel proposed I was an emotional wreck. He (Josh) is dying, you can’t survive this illness and we are trying to find out how long he has got.

“It is horrible, life will never be the same again.”

Danielle said: “Josh’s dream is to give his mum, who has dedicated her life to caring for him and supporting through his journey, a day that dreams are made of.

“Fiona is an amazing lady who is just as inspirational as her son. Her optimistic outlook on life is truly remarkable considering the heartbreak she is enduring.”

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